ATTENTION MEDIA & OTHERS SEEKING INTERVIEWS!
If you represent a media company, are a student writing a report or anyone interested in interviewing our visitors, please seek permission (see email address at the bottom of the page) before posting your requests or emailing solicitations for any talk show, magazine, thesis, census or other interview on any message board on this site. If not, your posts WILL be removed. Please respect the privacy of our members.
Congratulations on your pregnancy! I have an 11 year old daughter with SWCAH, and two nonCAH boys (2 and 3).
I had a CVS done with each of my latter pregnancies around 12 weeks. Once we knew (within a day) we were having boys, we didn't do the further blood work to determine CAH status. Our thinking was I wasn't going to treat affected boys with Dex, so just wait for the newborn screen.
I REALLY wish we would have done the testing. The newborn screens took several weeks to come back, even though they knew we were looking for something specific. Our ped endo assured us after our first son that we would get the results for our second son more quickly. No dice. I'm not sure if it is our state, but we spent weeks on pins and needles. We literally didn't sleep at night, taking turns watching the baby to make sure he was OK. After almost losing our daughter at 9 days of age, not knowing for our boys was stress on what should have been a very happy time.
