ATTENTION MEDIA & OTHERS SEEKING INTERVIEWS!
If you represent a media company, are a student writing a report or anyone interested in interviewing our visitors, please seek permission (see email address at the bottom of the page) before posting your requests or emailing solicitations for any talk show, magazine, thesis, census or other interview on any message board on this site. If not, your posts WILL be removed. Please respect the privacy of our members.
Adults with classical CAH (SWCAH) Aug. 25th, 2008 7:02pm
I stumbled onto this website yesterday (24 Aug). Prior to this, I did not know of any support groups outside of Cares, and only found Cares few years ago.
I was diagnosed with CAH at 7 days old (I'm 35 now). Things have changed a lot over the years in the treatment of CAH. One change that comes to mind immediately is Doca tablets - Periodically someone will ask me about the scars on my shoulder blades.
I was raised as a healthy child with very few limitations from my parents. My parents consistently reminding me to where my Medic Alert (I still do not like to where it!). My Doctors at Children's Memorial Hospital in Chicago monitored my health closely. I was rarely sick. When I turned 18 I aged out of Children's I struggled with finding a Doctor that was able to care for me. It took a job related move to Dallas to find a good Doctor.
Has anyone with Classical CAH had a problem with being over medicated? I was over medicated for about 8 - 10 years (50 mg of Cortisone and .2mg of Florinef), it took my Doctor in Dallas to figure it out.
