First of all, I would like to thanks to those people who ever replied to this thread.
http://www.congenitaladrenalhyperplasia.org/mb/main/0676686703/
As you know my 2y4m daughter takes 14.6mg Cortisone every day, it is a very high dose compared to the other kids in US. Yesterday I had a discussion with the doctor to find out the reason why she takes so much daily.
He told me that he already knew this problem because here in TAIWAN we can only get Cortisone not Cortisol. According to his study, the effect of this Cortisone (available in TAIWAN) is only 50% as the Contisol (available in US). In the other word, it is not pure. So children here in TAIWAN need to take more to get the same effect. Around 10 years ago, he ever told to the pharmaceutical company to import Cortisol to TAIWAN. However, they refuse because they can't make a profit to import this medicine to TAIWAN. If someone knows this pharmaceutical company, please push them hardly!
So the doctor told me that if I can get 5mg Cortisol from US or CA, he will use that for my daughter. However, people can't get Cortisol without a prescription, and she will need to take this for her whole life. Therefore, I will need to find a way to solve this problem.
Thanks again for your valuable info! I really appreciate your feedback.
