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re: Adults with classical CAH (SWCAH) Aug. 26th, 2008 12:47pm
Sue!
Oh my goodness! Me too! My adult endo and I found out that I had been VERY over-medicated by my pediatric endo (cortef/florinef) from birth to about 20 years of age.
I have problems with weight. I always have. I was always the chunky girl. Now I'm a chunky adult. The over-medication sucks. I am short and stout whereas my sister who also has SWCAH had better control over her meds and she is tall and thin. Did I mention the over-medication sucks?
Yes, I am trying my hardest with the weight and such... BUT the thing my endo is much much more concerned about is the potential for osteoporsis. With as much meds as I had been on for as long as I had been on them, I'm scared/ my endo is much more concerned with my bones.