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re: NIH visit jepordized by ex...please help Sep. 12th, 2008 2:56pm
Having participated in the Natural History study along with other studies at the NIH I thinkit is one of the best places in the country to get a VERY complete evaluation by one of the best endo's in the world. I had access to so many tests that I could never have done through my endo. They were able to recommend the best dose for me (SW CAH) and I feel perfect on the lowest dose ever for me. I thought I understood my CAH but they were able to educate me even more.
As a parent I'am sure you want only the best medical care for your kids. As a patient I jump at the opportunity to participate in studies at the NIH to help me and to help science out in studying CAH. Do your children have an opionion about going??
I wish you the best in getting your children in the study.
