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re: re: re: re: NIH visit jepordized by ex...please help Sep. 16th, 2008 9:33pm
Our experience at NIH was the best think we did since we found or daughter has NCCAH. We learned a lot about all details related to it, our expectations, new forms to treated, the best way to handle it, and most especially about the signs to be alert as they grow. We never thought our girl was part of a lab essay and on the other hand NIH study has a very novel cause..A future with no CAH. All the information they are gathering will be necessary for the creation of new medicines and the outcome of gene therapy.
