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re: My son's prognosis
Feb. 7th, 2010 4:54am

The logic of this is:

If your son has non-classical CAH then I wouldn't worry about treating him at all - it is too mild as you suggest!! Inconsequential for a boy really.....except that:

1). Unfortunately some doctors don't know really how to interpret what is non classical and what is classical where CAH is concerned. There are certain well known hormonal parameters/levels by which the various classifications or severities of CAH are denoted. However if your son's doctor is a Paediatric Endocrinologist s/he will be thoroughly familiar with these levels.

2). I struggle with the approach that it is "our son, our choice" The reason being is that whatever you decide will impinge on the child/the soon-to-be-adult, not on you. It is their life. The grown child is the ‘lived experience' partly of the repercussions of a parent's choice

3). A little puzzled by the "he is not in any danger". Danger of what? Death or short stature or adrenal rests?

However when all is said and done - as K in an earlier post so wisely stated: "Severe acne and pubic hair in a 6 year old is a huge red flag. I think of it this way; if those are the outward signs that something is wrong, just imagine what is going on inside his body".