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Return to Page 3Post reply
re: My son's prognosis
Feb. 7th, 2010 4:56pm
I trusted an endocrinologist the first week of my daughter's life. Granted she had classic CAH. But classic or late onset, I learned a very very very hard lesson in my life. Something I cannot take back, and will haunt me forever. I chose to trust in a doctor that had 25 years experience, was a teaching doctor and had groups of interns following his every word. I was told by the hospital counselor that I NEEDED to trust him and not my own gut feeling. After all, he was the professional and I was not. So I did. That belief that he knew more than anyone out there almost led to the death of my daughter. I was brought up to trust doctors. After all, they are doctors. And you do what they tell you to do. Needless to say, he misdiagnosed my daughter at birth and by week one we almost lost her. He said, "I have never made a mistake in the 25 years I have practiced." Well guess what. His luck ran out. And unfortunately on my daughter. Kandice, I know you love your son with all your heart. What mother doesn't. And sometimes a diagnosis like CAH, classic or late onset is one hard pill to swallow. If a doctor gave me a choice like that, and I trusted him, I would choose to not give meds. because who wouldn't want this disease to disappear? I know I did, and still wish it would. Let me tell you, CAH is NOT a choice to treat if you want a healthy human being in the end. I am not saying you are running from the truth. But I do believe you are trusting too much in this doctor. What have I learned in the 12 and a half years that I have had my daughter? You are your child's ONLY advocate. Question everything. Weigh your facts. Pray on it all. And then make that decision based on what you know. Not what a doctor tells you. PLEASE. Get a second opinion. It can't hurt. But I can tell you, staying with this endocrinologist and his ideas will.
Laura
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Return to Page 3Post reply
This ThreadKandice: My son's prognosis (Feb. 6th, 2010 8:00pm)
Laura: re: My son's prognosis (Feb. 7th, 2010 4:56pm)
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